health

Thank You — I’m Sorry

Feels difficult to be writing about our problems and fundraising successes when such horrific things are being experienced all around the world.

It also feels difficult to be saying thank you to one particular person or group, when so many people have offered their help to us.

I want you to know you are all appreciated. Every single person who has shared our fundraiser or our fb page or donated, is being held eternally in my heart. Seriously, I actually have a massive jar that I am filling with the names of people who have helped us in any way, and I will never be throwing that jar away. I don’t ever want to forget who, and how many people, helped us.

There are very few silver linings I have been able to find in the horrific situation I have had to experience. I think the most powerful silver lining I’ve found, though, is the surprising (to me) uprising of compassion and kindness that exists in people, both nearby and widespread, that is ignited when needed.

It’s an amazing blessing to watch individuals, groups and communities come together and give the kindness, compassion and generosity that we’ve seen and received.

I write this with the knowledge that whilst I am receiving love and compassion, on the other side of the world (and all over the world for that matter), there are parents having to plan their children’s funerals (amongst other tragedies) – and just nothing about that makes any sense to me.

I suppose I’m writing this because, whilst tragedy is happening in many parts of the world, I don’t want to stop thanking the people who are helping us reach our fundraising goal. Because I need to give recognition and love back to those who have given it to me and my family.

I also rarely have a good enough day to write a post myself so I wanted to take the opportunity while I can…

So, here I am, thanking everyone who has helped us in any way with our fundraising campaign. I want you to know, your compassion gives me the strength to keep fighting.

So to those helping us, thank you. Thank you, thank you, thank you.

And to those suffering tragedies, I’m sorry. I’m sorry, I’m sorry, I’m sorry.

All my love,

Zoe

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Where Stuff’s At …

Wow, I love the memory of being such an active blogger.

Unfortunately my health has continued to decline and writing has become very difficult for me. I’m learning the speak to text strategy but it’s not the same. I seem to think while I’m typing, so trying to think while speaking feels much more like being put on the spot.

Anyway, I’ve also been extremely unwell over the warmer months, with my health just seeming to get worse and worse. So I just haven’t had the energy to write OR speak a post during this difficult time.

I hate to sound soppy and self-pitying, but I’m not sure this post can come across as anything but?

I really got a bit sad that I wasn’t getting any of my thoughts out there or discussing things with the interesting people I know follow this blog. And I wanted to firstly, start my blogging back up again, and secondly, fill you all in with where I’m at.

So … let the soppy begin …

As I said above, my health has deteriorated. But to be clear, it has deteriorated intensely.

I now have paramedics out every few days, sometimes every second day. I do this when I am extremely syncopal (passing out) and need IV fluids to fill my blood volume again, to prevent the syncopes.

I’ve also had a lot of hospital trips when the paramedics couldn’t stabilise me at home.

And there’s been the occasional admission to hospital for migraines and severe pressure headaches that are un manageable with my medications and also go on for several days.

At the same time, we’ve had a billion other things we’ve been trying to tend to.

One of the things we’ve done that has proven pretty fruitful, is to keep researching the conditions I have. We realised that one of the conditions I have, that has to do with mast cells, is linked, or mirrors (if that makes more sense) someone who is allergic to a huge amount of stuff and whose allergic threshold lowers to the point that they begin having allergic reactions to things they have never reacted to before. So this particular allergic threshold spirals further and further down, creating more and more restrictions in foods, household items like soaps etc., medicines or medical equipment (like the tape they use on cannulas etc.) and environmental factors such as pollens, chemicals, grasses, trees, weeds — all of which I am surrounded by.

From the outside, it basically looks like my body is shutting down on itself.

No. Not a very nice thing for the witnesses to watch or me to be experiencing.

But at least we figured out, through a variety of methods, that a better climate, where the environmental allergens are much less impactful on my body, is what I need — quite urgently.

Every doctor that we speak to urges us to move to a high, dry and cold environment — every. single. doctor.

I have to admit, that was a bit of a shock at first, but the more we researched and talked with doctors and the more we looked back on my life and remembered the times I have been very sick while living in an environment full of things I was allergic or sensitive to, and then we moved to a better environment for me and my health improved dramatically — the more everything began to make more sense.

When you’re trying to explain it to people for the first time it’s really difficult, so hopefully I haven’t just confused the crap out of y’all. 😉😂

But now that that’s done, I feel like it might be easier to just get on with blogging or vlogging without quite so much confusion around why my body is as unwell as it is.

I have had so many posts I’ve wanted to write or videos I’ve wanted to record, about things like the silver linings to being so disablingly unwell, our amazing paramedics, watching how families can bond tighter in these situations as well as all my ballet stuff … which, to be honest, isn’t very much but it’s still my favourite passion and I still want to talk about it.

I’m proud of myself for continuing my exercise regime and my ballet-physio every day (most days.) Even though I only do a tiny amount now, I am holding hope in my heart and determination in my mind, that one day I will be able to do so much more.

Boy, do I have plans, for when I get my health back.

Anyway, we have started a fundraiser for us to hopefully be able to afford to buy a caravan and then we’ll just move into the caravan, in the better environment that we know my body responds well to.

So the fundraiser is at the link: Zoe’s Fundraiser

If you feel you’re in a position to donate to our fundraiser then that’s fantastic. If you can’t donate, you can help just by sharing the fundraising page.

Alternatively you can also like our Facebook page at: www.facebook.com/helpzoegetherlifeback and share the page or posts you like.

Ok. That’s it for now, guys. If you read to the bottom, thank you. You’re a gem. If you didn’t, I just hope you read enough to understand where I’m at, because I won’t be explaining it over and over again.

Much love to you all. I hope you have a wonderful day/night/moment today.

Love,

Zoe xxx

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Dear Dream Seekers

Dear Dream Seekers,

You are wonderful. You are inspiration. You are life being lived.

I love seeing so many adult ballerinas emerging currently. Particularly on Instagram, it’s like watching these beautiful buds of hidden desires start opening their dare-to-dream petals and blossom into the most beautiful, soulful dancers.

Something I have noticed is that there seems to be an ever persistent pressure flowing from within many of the adult ballet students I see.

Inner pressure to be good at something we love is not a new thing. It is natural to want to progress.

And I am no stranger to that inner pressure. I felt it. I breathed it in and out, day and night. And it happily went and killed my love of ballet (for a while.)

And so I feel a little sad when I see people putting huge amounts of pressure on themselves to be better at something they love.

I mean, if you love it, then you should be doing it for love.

Let’s repeat that: If you love it, you should be doing it for love.

I know that you want progress. And I know that the ballet studio is a pretty intense place regarding your progress — indeed, it can sometimes feel like a comparison festival is happening in each class.

Everything you want is a valid desire. Improvement, enjoyment, strength, musicality, memories, flexibilities. It’s up to you what you want to aim for. It’s your life. Your choice. No-one else can, or has the right to, choose them for you.

But please be sure to think about it first. Think about you and what you really want because of how those things make YOU feel.

Don’t look at what someone else is doing and just follow along. God knows, you might wake up ten years from now able to do the splits but not able to dance in the centre. You might then shake your fists in the air and scream at yourself for following the splits trend only because it was what others were doing — and you missed getting your teacher to help you learn some amazing mini-solo piece that feels like heaven to dance.

Don’t set yourself up to one day wreak of regret.

So, with that in mind, what I do hope you do is sit with yourself a while. Ask yourself what you feel in this moment you want to do — like actually do right now — because you never know what amazing idea might have been waiting to flow through you but just hasn’t had the window opened to it before.

Then, ask yourself what you think you might regret NOT doing in twenty years time. I usually get my deepest inspirations flowing from this one.

Then lovingly think about all the things you, your body and mind, are good at doing. Really appreciate those things. If ballet is your thing, maybe you’re really musical and your body just naturally flows with the music, maybe you have lovely hand expressions, maybe you have a sparkly passion, maybe you have strong muscles, maybe you can smile during class (harder for some than others!), maybe you understand combinations, maybe you are flexible, or have lovely feet, or maybe you feel your soul fill up during ballet class.

These are all wonderful elements of what you do and of how you feel. I feel it’s important to fully embrace them. Soak yourself in the things about you and your passion, that you love.

When thinking about what goals to set yourself, or what path to set off on, I think it’s really important to take stock first, of all the wonderful parts of yourself that already exist within your passion.

I would look at what you love doing now, look at what you would regret not doing, and set your path accordingly.

If achieving the splits for ballet is part of that path then set your goals and go for it. If it’s smiling more during class, or learning a combination, or performing — then set your goals and go for them.

But be sure to start your intentional path with the full acceptance of how incredible you already are.

Be sure that you don’t discount all of your gloriousness and just focus on what you cannot yet do. If you do that you will be starting your journey with a destructive cycle of focusing on your downfalls. You should be real about yourself. But leave the negativity at the door. If negative self-worth is already an issue for you then I would suggest adding that to your goals — “Learn to love myself for all that I am.” That, and if neccesary, see a therapist, because honestly, that bullshit will become a serious obstacle to you fully realising your dreams.

So, in summary…

1) Align your goals with what YOU enjoy doing and what you feel you will regret not doing.

2) Make sure to begin your path to your goals/dreams/passions swimming in self-appreciation for all the wonder you already are.

Always remember why you’re doing it.

Always respect yourself for doing it.

Always hold your head high.

Remember,

You deserve to be in the room.

Zoe xxx

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Above and Beyond…

Paramedics were called out again this afternoon. Not great.

HOWEVER…

While here, they told me about the headway they’ve been making in getting our little rural hospital to give me regular, preemptive special IV therapy.

The idea being that this IV therapy would hopefully reduce the amount of times I need emergency calls to ambulance services, helping me to not get as severely sick as regularly as I am at the moment and not clog up their services when someone else could be doing it. It’s not a perfect system but it’s better than anything we’ve got going now.

We’ve been trying to get doctors and community nurses to make this happen for a long time now, without any luck.

So one of our amazing paramedics decided to march up to the community nurses and the hospital and see what they could do to get it happening for me.

And today, one of these amazing paramedics said he’d convinced the hospital and nurses to give it a try and see if it helps — probably just over summer, as that’s when I tend to need this treatment the most.

It just blows my mind when I see someone go above and beyond, to help others.

Thank you Mr. Paramedic. You rock.

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Ballet-Physio Update

A few supine leg stretches. Feels great to be moving again.

Hope everyone is treating themselves fairly, cause you know, unfair treatment of yourself will likely lead you to a place you don’t want to visit.

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When the Repressed Rise

‘Why do gay people need to display their sexuality? Why can’t they just keep it quiet? Why do they need to make a big deal about it?’

I keep hearing this, and other versions of this, regarding other sections of society that have been repressed and are attempting to step forward and be accepted as equals.

I’ve heard it about the Black Lives Matter campaign, that some feel should be ‘all lives matter.’

I’ve heard it in relation to feminism as well.

‘Why do women have to rave on and on about how they were treated in the past? Or ‘pull the woman card?’

So, here’s my attempt at an explanation.

There’s a genie in a bottle story — I’m fuzzy on the details but my version goes like this…

If you take a genie and you put it in a bottle and leave it there for 2 weeks, then let it out, it’s going to be relieved to be out of the bottle, it’s going to be relieved to be able to move around and to feel free again. It may even thank you for letting it out.

If you leave the genie in the bottle for 6 months, then you let it out, it’s gonna be relieved to be out and to have its freedom, but it’s also gonna be a little pissed at you for squeezing it into the bottle in the first place and leaving it there for so long.

If you leave the genie in the bottle for 2 years, it’s gonna come out and primarily be pissed at you for leaving it in there so long. It’s gonna be angry, upset and hurt. Maybe even confused as to why you did this to it.

If you leave the genie in the bottle for 10 years, it’s gonna come out mad as hell. It just lost 10 years of its life. A decade of feeling like no one gives a shit about it. A decade of feeling like it isn’t important and of not being heard.

At this 10 year mark, before the genie decks you, it’s probably gonna scream every obscenity at you, and attempt to get you to understand how you’ve made it feel.

It will probably want you to acknowledge what you’ve done and maybe even want to get some kind of redemption or compensation for it.

Then it will never talk to you again. And it will only ever remember you as the arsehole who locked it in a bottle for ten years.

——–

Imagine, then, what the genie might feel and want to do if you left it in the bottle for thousands of years.

Thousands, of years.

The genie is not going to be mad as hell, it’s going to be explosive.

It’s going to be outraged.

It isn’t going to feel like the fight is over just because it’s out of the bottle. It’s going to want justice. It’s going to want you, the bottler, to be held accountable.

I can see, then, why some people might think it’d be easier not to let the genie out of the bottle now, after those thousands of years.

If you’ve left it in there for so long, and you know how outraged they may be if you let them out, then you know they may be so disruptive once let out.

Much less mess if we just keep the lid on it, right?

Well, for some, sure.

But when we shift our minds from the genie analogy to our very real social minorities, then it’s no longer just a story about a genie.

Now we are talking about humanity. And we should see it as a humanity — because we ARE talking about humans.

You cannot repress people for just being who they were born as — for just not being born, a man, or a heterosexual, or white. You can’t repress people for that, and then expect them to not fight back, get angry, want justice, make noise, and seek redemption and acknowledgement at some point.

At some point they’re going to rise. Come out of their metaphorical bottles.

And you can’t expect them to not dance in the streets and rejoice publicly when they make progress in their quest to be seen as equals.

So, the very act of wanting a once repressed person to repress their joy when they are no longer repressed, is ironic and nonsensical.

I hope, in moving forward, that I am witness to many more public displays of love and joy when the repressed rise, become seen, heard and accepted.

I look forward to seeing dancing, singing, hugging, kissing, confetti, and loads of loud and disruptive displays of celebration as each step of equality is taken.

With understanding and compassion to others, no matter how different they look from us, then we can change.

If we all do this, maybe anything is possible?

Zoe xxx

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Affordable Ballet Gear!

I’ve been on the hunt for ballet stuff to upgrade my gear due to filthiness and going up in size, and I’ve been searching high and low for everything from tights to leotards and flats.

It’s a little extra tricky to find bargains online from Australia as most of the big discount suppliers are the U.S.

But I HAVE found a couple of bargains and thought I’d share them here with you because there are so many of us getting either ourselves or our littlies ready for another year of dancing.

So my two favourite bargains have been:

1) Leotards at Capezio Australia that have been reduced. I found one for $5 and one for $10 and I bought them both!

2) And AMAZON! OMG go check it out dancers and dance mums, if you haven’t already! There are women’s tights for around $15AUD including shipping! I’m sure you could get even cheaper prices if you hunted around longer.

Here is the link to the adult tights I think are a bargain: Ballet tights

And here is Capezio Australia’s site address if you wanna go check out their sale items: Capezio Australia

I’ve never hunted for sale items before. It’s a real hoot!

Oh, and I am in no way affiliated with those organisations. Just passing on the info.

Happy hunting!

Zoe